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My inner monologue for the last few months has been multiple variations of the same question, “How do I write this post?”
Since I started this blog four and a half years ago, I’ve always struggled with just how much I should share. One side of me wants to err on the side of caution since I know once something’s out there I can’t get it back, but another side of me wants to be an open book because I know how much simply sharing our experiences can help others.
To be honest, keeping such a huge part of my life a secret has been difficult. Sometimes the weight of keeping a secret makes the secret itself even harder to bear so with my son and husband’s agreement, we’ve decided to share our story.
As I mentioned in my last post, our son’s about to have brain surgery. A week from today to be exact.
Five and a half years ago, at the age of nine, Daniel was diagnosed with Parkinsonism. We always knew (based on family history) that he may develop the disease at an early age, but we were thinking he might have until his mid to late teens before he experienced any symptoms. Anyone familiar with Parkinson’s knows it’s a disease typically seen later in life (the average age of diagnosis is around 60) so a diagnosis around 16 or 18 already would have been rare and extremely early. Needless to say, we were really caught off guard when he started having symptoms and was confirmed to have it at only nine.
He’s been taking medication for Parkinson’s disease ever since. I can still remember the first time we filled his prescription. The pharmacy called us certain there had been some sort of mistake, “Children don’t take these medications.”
We were really fortunate that his meds worked well for as long as they did. In the beginning, they did make him nauseous and sometimes sick (we had to pull over to the side of the road so he could throw up on more than one occasion), but for almost four years we were able to pretty much predict and control his symptoms. We could go out in public, and no one would ever guess anything was wrong with him. We might have to plan ahead a little and make sure he had a dose 20-30 minutes before we needed to be somewhere, but overall they were extremely helpful.
Then in early 2016, we noticed his meds weren’t working as well anymore. He started to need more medication in less time, his tremors could start seemingly out of the blue, and his symptoms were getting harder to control. He started spending more and more time alone in his room waiting for his pills to kick in, and he didn’t want to leave the house often because he didn’t want anyone to see him shaking. Unfortunately, anxiety can make the symptoms worse so sometimes he would be fine when we left the house and unable to walk by the time we got to our destination only fifteen or twenty minutes later.
This past January, his doctor agreed that it would be a good time to look into deep brain stimulation as a way to help alleviate his symptoms and hopefully improve his quality of life.
Unfortunately, everything with specialists takes forever, but after six months of driving to and from MRI and PET scan appointments, check ups, watching him get worse, and a lot of waiting, we finally got the good news. Daniel could have surgery, and we only had to wait six weeks!
The surgeon will be using two of these “happy meal toys” (doctor’s words) on Daniel during the surgery. The little metal battery packs will be implanted under his collarbone.
Daniel is ecstatic! He can’t wait for the surgery and for his symptoms to be less severe. My husband and I are excited, but a little anxious too. Most of all, we’re optimistic that this will greatly reduce his symptoms and improve his quality of life.
This is this first time I’m sharing anything about Daniel’s condition because, for a long time, it was our family secret. Since he was so young when he was diagnosed, he didn’t really understand what was going on. He knew he shook sometimes, and that his medication could make him better, but that was about it. We didn’t want to burden him, our friends, or loved ones with information about his condition and the path we knew it would probably take since, at that time, he seemed fine. We figured everyone would know soon enough and there was no reason to worry them with “what-if” scenarios.
As he’s grown, he’s asked more questions, learned more about his condition, and his symptoms have become impossible to hide. Since he’s now aware of and understands things, frequently has to use a wheelchair, and is going to be having brain surgery (there’s no way to sneak that by him or anyone else!), we figured it was a good time to be open about everything. Trying to hide his diagnosis and pretend everything was okay felt necessary for a while for his sake, but there’s really no point anymore. Honestly, it’s a huge relief to just be able to talk about what he’s going through.
I’m anxious for the next month and a half to be over. As much as I try to live in the moment, I’m also a planner so having big unknowns hanging over our heads makes me a little uneasy.
I’m trying to do everything I can to prepare in the mean time, which has meant making freezer meals and doing some serious decluttering, both of which I can’t wait to share with you all soon. I’m hoping to have my first video recorded and ready for next week!
I know some people may be confused by my decision to jump back into blogging and even start a new youtube channel right now, but the truth is it helps to have things to distract me. I think I might go crazy if all I focus on is Daniel and what he’s going through. I guess I cope with difficult situations in two ways: inappropriate humor and keeping myself busy! The good news is our house is in such a disastrous and disorganized state that I have months (if not YEARS) worth of blog and video content ahead of me. Silver linings!! 😉
This is so hard to read. It must be a million times harder to write. Praying for you all.
Thank you, Sarah! <3
I will be praying for Daniel and your whole family!
Thanks for sharing! You’ve got this! I remember when my son had to get a shunt placed from his brain to his stomach. He was two months old, and I was a nervous wreck. As we were waiting for him to go into surgery the neuro-surgeon came out to talk with us. The doctor could see I was a nervous wreck and to comfort me said, “Calm down! It’s just brain surgery.” He was being very serious and strangely enough, his words did comfort me. I realized that for him, he did this all the time and it wasn’t a big deal. I gained perspective and knew everything was going to be okay. Now whenever we face something difficult, I tell myself, “You can do this! It’s just brain surgery!”
Good luck and blessings to your son and your family!
I’m so sorry you had to go through that, but I love that perspective! I had a similar realization when we met with his surgeon in July. He is obviously very passionate about his work, and he kept apologizing for being a couple hours late to our appointment. I said there was no need to apologize! We knew he’d been in surgery, and we want him to take as much time as he needs because that’ll be our soon in there soon enough. It is comforting to know that something that’s such a big deal to us is just his normal 9-to-5. lol It’s a huge comfort to feel that Daniel will be in great hands.
Thoughts and prayers are with you , Daniel and your family. He holds you in the palm of his hand….
Praying for a swift recovery! Thank you for sharing, I had no idea you could be diagnosed that young!
Thankfully, it is extremely rare. Figures the odds would be in our favor for something like this and not that 700 million dollar powerball from a couple days ago! ????
Wishing your son all the best with his surgery! ❤️
Emily,
My thoughts and prayers for you and your family, especially for Daniel.
Sincerely,
Nancy
Dear Emily,
I’m so sorry your family is going through this, and I’m so proud of you for sharing your journey. Please keep us updated on all the great progress we KNOW he is going to make. We will definitely be praying for all of you!
Blessings!
Deborah
God bless all of you. My prayers are with you????
My dear Emilly i hope everything going good with your son’s brain surgery.
Have a big kiss from Portugal, our prayers will be dedicated to you.
I wait to heard news from you.
Have faith
Kiss
My husband has Parkinson’s, so I can appreciate the difficulty in your young son’s situation. Our heartfelt prayers go out to your family! Thank you for sharing such a personal part of your life.
Christine
Your family is in our thoughts and prayers. Thank you for sharing your story. *hugs* to you all!
I pray for your son and his speedy recovery. I also pray for you and your husband that you will keep your faith through all of this. God works in mysterious ways and I know he will watch over Daniel. God bless you and your family!
When our children are not OK it’s one of the worst feelings. I am so sorry that your family has this to deal with. I’m wishing the very best outcome and praying for peace and comfort for your son and all of your family.
I hope sharing your story has lifted a weight off your shoulders. I’ll be thinking about you and your family and hope your son’s recovery is smooth and uneventful.
Emily, I was very touched by your announcement of your son’s upcoming surgery. As a mother my heart goes out to you and your family! I will be praying for your son and your family and will put your son’s name on several ministry websites for prayer as well. Your newsletters are very helpful and I can so relate to the disorganization and etc. I have ADHD, just realized I have it at age 50. You are also so uplifting and I love your sense of humor. With Love and Prayers. Vicci
Oh Emily…..my heart goes out to you guys with all the struggles you have been through. What a sweet, courageous boy Daniel is. My thoughts are with you, Daniel and your family as he goes through his surgery, which I am sure is going to be a great success. Best of all to you!
Sending you and your family many prayers!
I wish him tons of good luck.
Such a brave and personal post! O will be keeping your family in my thoughts and swndkng positive vibes that way. I wish the best for your son and for a speedy recovery!
Best of luck with your son’s surgery! I hope he has a successful outcome . The treatment of Parkinsons has certainly come a long way.
We struggle with it every day with my mother in law. It is so much more than a shakey disease.
Stay strong, and give that beautiful boy a hug!
Hi Emily. I’ve been reading your blog for some time now. I noticed at the bottom of your blog email that it says Dayton, OH. I am just 20 min north of Dayton. 🙂 I will lift your son and your entire family up in prayer. Our Great Physician knows Daniel’s needs! May the Lord bless you all.
I don’t know you, but feel like I do a bit through your designs. Thank you for posting about your son. We will be thinking and praying for you all as you want through this process.
One thing I wanted to share out of my own experience. These types of surgeries are often harder on the family than on the patient. While the patient has to go through the physical pain, the family has to watch and help. I had brain surgery as a young adult and found such excitement and freedom through the process. It was something that was going to make me better. However, others saw it as poor me and such a sad thing that I had to suffer so much. So take care of yourselves as well in the process. It is great you shared with your blog so those close to you can help when needed. Godspeed and happy recovery for you all!
I am praying for your son and your family. Hope God wraps his loving arms around all of you.
Emily, sometimes there are no words that can adequately respond. Thanks for your openness. Life can be so so challenging and painful and we all should lean on each other. Virtual hugs and prayers to you, Daniel and your family.
As a parent, my heart & prayers go out to your family. I can’t imagine carrying this information around for so long. Many prayers sent for a successful surgery 🙂
Bless your heart and thank you for choosing to share your journey with us. I know that was no time an easy decision. Praying for you and your entire family.
Thank you for honestly sharing this difficult part of your journey. We will pray for your family.
My prayers are with you.
Sending prayers for your son & family! It was incredibly brave of you to share your story. I hope this brings awareness to all!
Our thoughts are with you for a speedy and successful outcome.
Godspeed .
My prayers for your family and a succesful surgery. I too have the same reactions to stress. I tend to clean, and laugh at things at the wrong times. I have a friend that went through this surgery and has done wonderful! God is wonderful .
Good luck to Daniel, I’m sure that in a couple of months you will all look back proud that you have come through such a difficult time so well.
The best to you, your son and your family. Thank you for sharing. My thoughts and prayers are with all of you!
This post was well written and perfect. I know it was hard for you to write, but think of all the moms out there that you can help by sharing your story. Praying for you in these next few months friend.
Thank you for sharing. You are not alone. So many parents have issues with their children’s health and well being. Your story is an inspiration not a burden. Prayers for your son. I have two kids. One had mental problems the other has a rare uncureable liver disease. These things happen. Thank God we have each other to help us carry on. God bless you and your family.
Will be thinking about all of you and praying for a successful surgery. Prayers specifically for wisdom, clarity of thought and genuine rest for the physician performing the operation; a cooperative and knowledgeable medical team who work well together, no atypical side effects, speedy and complete healing for your son. Sending you (((((hugs)))))) good thoughts and happy vibes along with ????????????????????!
Oh wow. This will be soooo amazing. I watched a Tedtalk about female neurosurgeons and she showed this. It almost made me want to become one myself. I’m so happy your son is getting this. I am so sorry that you have been dealt this to deal with. How graceful you are. God bless you.
It is fascinating! My husband has actually said the same thing, “Maybe I should’ve been a neurologist.” He’s actually having a rare (and I guess new) version of the surgery too where the entire thing will be done in an MRI machine! That’s why the tools are plastic “happy meal toys.”
Wow Emily,
You have a lot on your plate. I admire you to keep busy during this difficult time for your son.
Dear Emily, I wish you and your husband all the strenght you can use next week and the weeks after. Daniël good luck, your a brave one ????????
Sending love from Holland
You did such a good job of writing this, Emily! You and Daniel will be in my prayers. Looking forward to a speedy recovery and fewer symptoms for Daniel!
Thank you, Katie!! <3
I’m older 62, but I had DBS surgery a little over a year ago. Mine was for essential tremor, it had become for very debilitating. Couldn’t write, couldn’t use buttons, had to use a very large spoon to eat….
DBS has been a game changer. I have my life back! For me the worst part was growing my hair back. Minimal pain or discomfort. Once I got home I only needed to take ibuprofen.
I pray that your son’s surgery is as smooth and trouble free as mine was.
Praying with you,
Rhonda Coone
That’s wonderful to hear, Rhonda! Thank you so much for sharing and your reassuring words. My son’s condition has become quite debilitating as well, which is probably why he’s the most thrilled of all of us. He’s so sick of shaking. I’m so glad to hear about how much it helped you, and I’m optimistic it’ll be a game changer for him as well. 🙂
Emily, my thoughts and prayers are with you and your family! Kudos for sharing! We all need support to go through many of the challenges we are faced with.
Take care of yourself! You are an important part of your family!
Beth
Bless you for sharing. We are always quick to feel sorry for ourselves when all we have to do is look around and see what others are enduring! Help him keep a positive and thankful attitude! I was born with a handicap (permanently dislocated shoulder) and most people don’t even know because my doctor told my mom to teach me to be independent. My husband had to put my hair in a pony tail at a state park on vacation last Sunday because I had nothing to maneuver with to do it myself and he just could not even understand why I was asking for his help!!!!! So my husband even forgets after 30 years LOL. Prayers for the upcoming weeks!
Thank you for sharing your story. It may help another family that’s facing this! Don’t apologize for using inappropriate humor and busyness to get through this! Those are excellent coping strategies. Playing Candy Crush on your phone is also a good escape from the stress! I will keep you and your family in my prayers.
Praying for your son to have a successful surgery and praying for you all to get through this challenge❤
Best of luck for Daniel !!
Lots of love from Toulouse, France !
Hope all goes well. Positive thoughts being sent your way <3
Thank you for sharing your family’s story. Praying for a great outcome.
Many prayers for your son and your family! I work in nursing homes and see elderly patients with Parkinson’s disease and can’t even imagine having a son go through that especially at such a young age. My grandmother also had Parkinson’s and had the surgery done and it was incredible how much it decreased the amount of medication she needed, so I hope your son surgery goes just as successfully.
I am lifting you, Daniel and your family up in prayer! I am believing this surgery will be what he needs for complete healing! May God Bless you all!
Sending you and your family LOVE, STRENGTH and HUGS!!! I will have Daniel and your family in my thoughts and prayers. Blessings to you all!!!
I know how hard that decision to share is, you made the right choice in my opinion! Sending prayers and hugs that all will be well.
Thank you! I sure hope so.
Thankfully, such a surgery is available for Daniel. May the surgeon do his best work and the recovery be uneventful. Positive thoughts. ❤️
We are very thankful! He actually has said that quite a few times, “I can’t imagine what I’d do if I didn’t have medicine for this.” We are very lucky! <3
Thank you for bravely sharing your private family world with us :). Prayers for a smooth surgery and great outcomes! Seeing your kids go through difficult things is so tough…prayers for you and your husband that you remain strong and empowered for him 🙂
Praying all goes well with the surgery!!!
Prayers for you and your family and especially for Daniel. I can understand somewhat because my husband had cancer for years and years. Many hospitalizations, medications, treatments. It all equals worry because we have no control. Finding things to distract you is a GOOD thing, Emily. Those distractions will keep you sane. Also, remind yourself that these doctors know what they are doing. I read a post above where a woman said the doctor told here not to worry, “it was only brain surgery.” I LOVED that!!! I appreciate you opening up . You now have a bunch of folks in your corner, rooting and praying for you and Daniel and your family. Having a “great cloud of witnesses” to lift you up and have your back will be very reassuring and comforting.
Thank you for sharing this most difficult post. If I have your permission, I will add Daniel and your family to my church’s prayer chain. Certainly, I will be praying for comfort and strength for you all.
That would be much appreciated, Fran. Thank you!
Praying the Lord through the power of the Holy Spirit heals Daniel! Thank you for sharing so that many can be lifting you up in prayer. This is what the Body of Christ is all about! While I don’t know you, God does and He loves you and your family and has a plan even though we don’t understand this little part of our story, God has a metanarrative, His plan A not plan B! Praying people will see God’s Glory in all of this. Many hugs and prayers,
Emily,
What a burden y’all have had keeping it within the family. I can’t imagine. The relief you felt when you shared, I will keep Daniel, your family and the medical personnel involved in my prayers!
Blessings to you and your family!
Love and hugs and healing prayers for you all!!! Thanks for sharing! ❤️❤️❤️
Emily, Daniel and your family will be in our prayers. It sounds like you have a very positive attitude about the entire process. Bless you all ????????
Thank you, Lana! We really appreciate it. 🙂
Thank you for sharing a part of your life with us. I have just placed a prayer for you to the angels. Also, look us cannabis oil when you have the emotional freedom. Joy and bliss.
I have recently heard great things about cannabis oil and am definitely interested in learning more. Thank you so much for the recommendation, and if you have any sources or info to share I’d love for you to email me myloveforwords@gmail.com Thank you!
Dear Emily,
Thank you for sharing your hardship with us, to allow us to help you shoulder such a heavy burden. Prayers are with Daniel and your family.
My thoughts and prayers are with your family and your son. God bless your son. He will
Be in my prayers.????????????
My heart goes out to you and your family! I will pray that he has a fast recovery also!
Daniel is one heck of a brave lad and blessed to have a wonderful family. Love to you all. In my prayers x
My prayers are with your son and the family. My brother in law had the surgery and he was successful in the procedure.
Emily, I am reading this with tears running down my face for Daniel, you and your husband. My prayers for you all is for God’s healing power to fall on Daniel. My sister-in-law had this surgery last year with great results. God has a plan for your precious son. May God bless you all all in a special way!
Love and prayers,
Rita
Emily, Thank you for sharing your son’s story. Daniel and your family will be on our prayer list for a happy, successful result.
I had never heard of Parkinson’s in a child. I have had an “innocent familial tremor ” sine I was 9, and I can relate to only a sliver of what Daniel has been going through.
I am abundantly grateful for the time you give to this group.
Blessings,
Pam
What a brave, awesome Mama & woman you are!!! It’s hard to see anyone suffer, have difficulties &/or go through surgery, BUT 1,000,000 times harder if it’s your child!
Stay strong & courageous and you, your son & all your family will certainly be in my prayers!!!!
Dear Emily,
Thank you for your honesty and completeness in describing what Daniel, and all of you, are facing. I have a friend who had DBS for severe symptoms of Parkinson’s and it changed his life! I hope that it will do the same for Daniel—and am focusing on the best possible outcome for him, and all of you.
As a mom of a now-grown son who had many complex surgeries all through his childhood, I understand how hard it is— and you are right that a quirky sense of humor will help your whole family, as well as something busy and/or creative that keeps you nourished in body, mind and spirit.
Healing Hugs to all of you,
JaeLyn
Daniel is such a sweet and brave kid! Will be praying and hoping for the best possible outcome from the surgery for him.
Karen
Thank you, Karen! He is a sweet boy, and he couldn’t be more thrilled for Friday 🙂
I pray for you and your family. That had to be so very difficult to write. Thank you for sharing something so difficult. Please don’t ever worry about sharing things such as this. I got strep throat and lost all 4 extremities. We have found basically everyone cares and everyone is supportive. Once you tell the heavy weight is off your chest and you feel so much better. I had a friend who had this procedure done. Yes he was older. It changed his life. It’s amazing what medicine is capable of doing. To imagine this wire is the diameter of hair, only thinner. May you have peace and strength at this time. You are doing a miraculous job caring for your family.
I can’t even imagine what you’ve been through. Thank you so much for sharing and for your kind words. We are hoping the surgery makes a big difference for him!
Prayers for all of you. It’s so much better to have this in the open. No one needs to go thru something like this all alone.
Please continue to share with us and give us updates .
Awh so heartbreaking to read, can’t imagine how heartbreaking it is for your family to be going thru this & all of your friends.
Hope the surgery goes well and makes a huge difference. Thinking of you all.
My heart is heavy for you today while I was reading your son’s story,
But with all the prayers and blessing sent your way and the guidance
of your Doctor’s hands that are in the Lord’s guidance, we will be
Praising them both when the successful surgery is over. Praise God
and tell Daniel….you and him will dance, some day, at his wedding.
I know this was hard for you to write. Please know that our thoughts and prayers are with you and your family. He’s got this.
Regina xo
Emily,
Thank you for sharing your story. This reminds me of Psalm 91 of how God protects us and is with us always. He holds you and your family in the palm of his hands and lifts you out of trouble. May God keep and protect Daniel during surgery and may God’s love surround your family during this time.
I’m so sorry you all are going thru this. But I’m so glad you shared. It makes you human. Prayers lifting you up….God is in control. And He loves your son. Please let us know the status of the surgery…. Big hugs, Pebble
Emily,
Thank you for sharing your story with your followers. I can’t imagine the strength it takes to pen but to strangers about such a personal topic. Your story will allow for prayers for Daniel, you and your family in the coming days, weeks and months. I understand how you need a distraction from all that you’re facing and humor is also a outlet I understand well. You and your family will be in my thoughts and prayers. I hope you can keep us updated on the progress Daniel makes, as well as how your family is coping with this critical time in your lives.
Oh Emily! My prayers are with all of you. What a difficult thing. I agree this is something you needed to share. Certainly nothing to cause anyone to look down on you or your son. You need to be able to talk about this, and get the support you need. I am praying for a good outcome to everything. You take care!
Emily-
I am sending prayers and positive thoughts for you son and your whole family.
Casting all your cares on Him for He cares for you! You all will be in my prayers.
You are one very brave lady. When it comes to our children, we are all nervous wrecks I think. My husband had to have a shunt put in with a tube running from his brain to his stomach to drain off fluid; would you believe 14 years ago this month. They just had to drill a tiny hole in his head, that’s it! LOL He sees his doctor every two years now for CT scan and check up. He has been just fine ever since the surgery. I am sending you all positive thoughts and wishing your son a speedy recovery.
That’s amazing! I’m so thankful we live in a time when these options are available to us.
Sending prayers your way. Got some experience praying for daughters accident and a couple of pregnancy complications with grandkids. Will put that practice to work for your son. He has an adorable smile.
Hi Emily,
Thanks for sharing your family secret. My father had deep brain stimulation surgery to help with his familial tremor. It was amazing to see the results immediately ????. He was able to write after being unable to for over 20 years. He has had great results and was able to resume an active, quality life. I pray that your son will have an even better experience. May God guide the doctors and nurses. May you fell His comfort and the inexplainable peace only God can give!
That is amazing!! <3
I will definitely be in prayer for Daniel and the family. Gods got this!
So sorry you guys are going through this. Must be so hard. Keep your sense of humor! When my mom was in the hospital, my father and I were mortified at the things that came out of our mouths. That would make us laugh even harder. Laughing helps big time. Good luck to you all!
Laughing is a huge help! Thank you, and I’m sorry to hear about your mom.
Marge and Bonnie are saying prayers for Danny and your family. Our thoughts will be with you all. Hugs for Danny!!
Thank you, Bonnie & Marge! We really appreciate that and hope you’re doing well! <3
Prayers for your beautiful son. I’ve witnessed great outcomes from this procedure! You are doing the right thing for him.
May God guide the medical staff for a perfect surgery.
Thank you for sharing!
Thank you for sharing – and all the best for your son, your family and yourself!
Nerven wie Drahtseile! (nerves of steel) as we say here in Germany!
Praying for you. My mom had Parkinson’s. I can’t imagine having to deal with that as a child. All my best.
Our family is praying for you, both for the surgery and for peace. Your Maker knows you, loves you, and has a beautiful plan (organized!) for you.
My prayers are with you and your family. I hope that by sharing your story your burden is lightened.
I completely understand how nerve-wracking and worrisome it can be to have a child needing brain surgery. My daughter was born with a brain tumor and was only one year old when the surgery finally took place. Waiting those hours during the surgery were the hardest and seemed to stretch on forever. The surgery ended up taking longer than expected because the tumor had grown. I was so scared even though she had a wonderful woman brain surgeon, who did say something similar to me that yours did. Everything turned out well and it’s been years since that. I hope that everything goes well for your son too and that it will make him feel so much better. All the best to your son (such a brave boy!) and to you and your family <3 <3 Thanks for sharing, btw. It is so nice when people share their stories. <3
Thank you so much for sharing! That’s wonderful to hear. I’m so sorry you had to go through that, but what wonderful news that it was such a success. My husband just called, and my son’s finally out of surgery! He went in around 7:30 am and it wasn’t over until after 4 pm. We were told it would be a four hour surgery so we were starting to get nervous. Waiting really is the hardest part. Everything went well though so hopefully the hard part’s over now!
my prayer goes to you and Daniel. good luck for the surgery <3
Prayers with your family. My grandfather had Parkinson’s disease so I remember the tremors quite well with him. I can not imagine what you are going through and hope the surgery goes smoothly.
Thank you! I’m so sorry to hear about your grandfather. It’s so hard to watch loved ones with this disease.
Thank you! I’m so sorry to hear about your grandfather. It’s so hard to watch loved ones with this disease.
Still sending prayer and love.